With 12,000 people diagnosed with a brain tumour every year, there has never been a more important time to recognise the work of the teams that have helped patients through their brain tumour journey
● The newly introduced ‘Tessa Jowell Centre of Excellence status’ recognises the delivery of outstanding care and treatment by NHS staff in their efforts to provide above excellent patient care through a difficult time
● Three years ago, Baroness Tessa Jowell gave her powerful speech in the House of Lords recognising the need to improve brain tumour treatment, care and survival for all patients
● Brain tumours are often found at later stages; only 12% of adults survive for five years after diagnosis highlighting the need for further innovation in brain tumour care
● The mission is delighted to be embarking on the pathway to excellence with the 20 applicant centres, nine of whom have already achieved centre of excellence status in the first round.
Nine NHS hospital brain tumour centres across the UK have been recognised as a Tessa Jowell Centre of Excellence following the first round of rigorous expert-led assessments by the Tessa Jowell Brain Cancer Mission – and one of them is NHS Lothian’s Edinburgh Neuro-Oncology Centre.
The Edinburgh Centre for Neuro-oncology is based in two locations: the new Royal Hospital for Children and Young People and DCN (Department of Clinical Neurosciences) in Little France as well as at the Edinburgh Cancer Centre at the Western General Hospital.
With more than 12,000 people diagnosed every year with a primary brain tumour in the UK1, the award has been introduced to recognise hospitals for their excellence in patient care. It represents a step change in the neuro-oncology landscape across the UK.
Centres were measured on a range of criteria including excellent clinical practice and training opportunities; emphasis on patient quality of life; providing clinical trialsand offering a high standard of research opportunities.
Led by a committee of experts in the field and virtual site visits, the assessments were backed up by patient feedback collected by The Brain Tumour Charity about the care they received in these centres.
At least 88,000 British people are currently living with a brain tumour and over 5,000 people a year will lose their lives to it2. The “Excellence” status provides reassurance about the availability of excellent care within the NHS and positive recognition for its staff who, despite the challenges of the Covid-19 pandemic, continue to go above and beyond for their patients.
As a result, centres are increasingly adapting to the challenges of Covid-19 and are now offering virtual clinics for their patients.
Founded to design a new national strategy for brain tumours, the Tessa Jowell Brain Cancer Mission is committed to helping as many hospitals as possible achieve “Excellence” status in the future.
To achieve this, themission is launching the Tessa Jowell Academy, a national platform allowinghospitals to share best-practice to improve their services, as well as one-year fellowships for doctors to further specialise in brain tumours.
It is hoped that with the support of the Academy more centres will qualify for excellence status in the future, extending the reassurance of excellent NHS care more broadly and ensuring no patient is left behind.
Jess Mills, Co-Founder of the Tessa Jowell Brain Cancer Mission and Tessa’s daughter, said: “Mum’s mission throughout 50 years of her political life was to tackle systemic inequality.
“So, it was tragic whilst fitting, that her final campaign was a call to arms to create universal equality in access to excellence in cancer care throughout the NHS. It is with immeasurable pride that just 3 years later, the Tessa Jowell Brain Cancer Mission has begun the real-world translation of that vision into reality.
“We are thrilled to have awarded nine centres for their excellent ongoing work for patients and commitment to support other centres in reaching the same level of Excellence.
“Shockingly, the UK still has one of the worst cancer survival rates in Europe, but in time, the Tessa Jowell Centres will make the UK a global leader in the treatment and care of brain tumour patients. We have a long way to go until the cutting edge of science is delivered to every patient, but this is a huge and transformational first step.”
Tessa Jowell Centres of Excellence:
1. University Hospitals Birmingham NHS Foundation Trust
2. Edinburgh Centre for Neuro-oncology
3. King’s Health Partners / King’s College Hospital & Guy’s and St Thomas’s Hospitals
4. Leeds Teaching Hospitals NHS Trust
5. Salford Royal Foundation Trust and The Christie
6. Newcastle upon Tyne Hospitals NHS Foundation Trust
7. Nottingham University Hospitals
8. St George’s University Hospital, Royal Marsden Hospital and Royal Surrey County Hospital
9. University College Hospital London NHS Foundation Trust
Over £700M is spent on cancer research in the UK every year, yet less than 2% of that is dedicated to brain tumours. The Mission, which will be supported by the All-Parliamentary Group on Brain Tumours chaired by Derek Thomas MP, is calling upon further support for NHS centres to enable more of them to achieve “Excellence” status in the future.
To kick-start additional monetary support, the Tessa Jowell Foundation, the charity set-up by Tessa’s family to lead the delivery of her legacy, has announced a fundraising appeal to raise £4M to enable the centres to excel after the network is launched.
Professor Richard Gilbertson, Chair of the Mission, highlights: “When we put out a call to apply, we received an overwhelming and enthusiastic response from the community.
“There was a real sense of pride from NHS staff about the service they have been providing and how they strive to provide the very best care for patients, even in the midst of a pandemic.
“All applying hospitals were working to provide best care and we will be supporting those not yet ready for Centre of Excellence status to enact best practice across all areas. We will use the evidence collected from the applications forms to make a strong case to further equip these centres.”
Dr Tracey Gillies, Medical Director, NHS Lothian, said: “NHS Lothian is delighted our neuro-oncology centre has been awarded Tessa Jowell Brain Cancer Mission Centre designation.
“The service will join a new network of UK centres of excellence in neuro-oncology that provide the highest levels of patient-centred care for people with glioma, bringing innovation, research and clinical trials to advance treatment and quality of life for our patients.
“Sharing expertise and models of care within the Tessa Jowell Academy will allow patients across the UK to benefit from the complementary strengths of the different centres.”
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