A committed collaboration: 100,000 Scots on UK stem cell register

  • Over 20,000 of the 172,000 new stem cell donors added to the UK stem cell register in 2017 were from Scotland 
  • The total number of people on the register at the end of 2017 is 1.4 million 
  • Over 2,200 searches for donors for lifesaving transplants were made 

More than 20,000 Scots registered to become stem cell donors in 2017, bringing the total number of people from the country to 104,974, latest figures have revealed.

The annual review of the Anthony Nolan and NHS Stem Cell Registry reveals that while the UK stem cell register now stands at 1.4 million, young men are significantly under represented on the register.

If a patient has a condition that affects their bone marrow or blood, then a stem cell transplant may be their best chance of survival. Doctors will give new, healthy stem cells to the patient via their bloodstream, where they begin to grow and create healthy red blood cells, white blood cells and platelets.

More than 2,200 searches for a lifesaving transplant were made in 2017 with 82 per cent of people who donated stem cells or bone marrow men, and 57 per cent men aged under 30. Men under 30 make up just 12 per cent of the UK stem cell register; highlighting the importance of raising awareness of their lifesaving potential amongst this group.

Marginally fewer donors from black, Asian and minority ethnic backgrounds joined the UK stem cell register in 2017 (23,947 vs 24,383 in 2016). Donors from minority ethnic backgrounds make up just 14% of the UK stem cell register (the remainder are 85% northern European, 1% unknown/prefer not to say). The result is that patients from black, Asian or other minority backgrounds have a 20% chance of finding the best possible stem cell donor match, compared to 69% for northern European backgrounds. 

The combined UK register is known as the Anthony Nolan and NHS Stem Cell Registry, and is made up of donors recruited by NHS Blood and Transplant, the Welsh Blood Service, DKMS and Anthony Nolan. The UK donor registers are urging young men, and people from black, Asian and minority ethnic backgrounds to register and ensure that all patients in need of a stem cell transplant can find a, potentially, lifesaving match.

Henny Braund, Chief Executive of Anthony Nolan, said“Despite a pleasing increase in the number of young men joining the stem cell donor register, the fact remains that 12 per cent of the register provides 57 per cent of all stem cell donations.

“We have had great success working with schools, colleges and universities across the UK through our Marrow and The Hero Project programmes – and will continue to focus our efforts in this area to meet our ambitious target of recruiting 100,000 potential donors a year by 2020, of whom 20,000 are from minority ethnic backgrounds.

“Anthony Nolan is delighted to work in partnership with NHS Blood and Transplant, the Welsh Blood Service and DKMS and will continue to work collaboratively to meet our shared vision of finding a match for every patient in need of a stem cell transplant.”

Cath O’Brien, Director of the Welsh Blood Service, said“The Welsh Blood Service is pleased to see the hard work and dedication across the UK aligned registry has resulted in an increase in the number of patients finding a potentially lifesaving transplantation match.

“At the Welsh Registry we are proud to offer an agile service which can meet the needs of UK transplant centres thanks to a strong panel of passionate and committed donors.

“It’s important that we continue as an aligned registry to expand the number of potential donors on the UK register, in particular the young and BAME donors, to ensure that all patients in need of a transplant can find their potentially lifesaving match.”

Guy Parkes, Head of Stem Cell Donation & Transplantation at NHS Blood and Transplant, said“The cord blood bank continues to help us serve the black and Asian communities, who struggle to find a matching donor from the adult registry. 

“We are pleased that our efforts to target and grow the number of black and Asian donors has been delivering results, and we look forward to continuing this life saving work with our partner registries.”

Stephan Schumacher, CEO of DKMS said: “We are pleased to see the registry grow again in 2017, and proud of DKMS’ significant contribution to this success.

“Our goal as a charity has always been to provide a second chance at life to as many patients as possible. This is why we register people up to the age of 55, and focus on increasing the pool of donors so that patients – especially those with rare tissue types – have the best possible chance of finding their potential lifesaver.”

To read the full report, A Committed Collaboration, click here

https://www.anthonynolan.org/

New and total number of donors, per region

Region New donors in 2017 Total number of donors
East 12,487 78,421
East Midlands 15,250 137,695
London 24,860 207,937
North East 9,440 65,875
North West 16,905 148,305
Northern Ireland 2,239 24,305
Scotland 20,318 104,974
South East 22,917 211,058
South West 12,631 113,544
Wales 10,199 101,864
West Midlands 11,645 112,664
Yorkshire and Humber 10,096 71,444

 For more information about Anthony Nolan, to find out where to donate or to sign up to the register go to: 

https://www.anthonynolan.org/

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davepickering

Edinburgh reporter and photographer