Category: North Edinburgh News

Edinburgh leads the way with breast cancer trials advocacy service

Bringing new hope to patients with the help of specialised nurses

Scotland is leading the way with an innovative service for secondary breast cancer patients. 

The Patient Trials Advocate service, (PTA) is the first of its kind in the UK, and it’s bringing fresh hope to those with the incurable cancer by introducing them to clinical trials which can help to improve outcomes and extend life. 

The initiative has been developed by charity Make 2nds Count which campaigns to raise awareness of, and fund research into, secondary breast cancer – a form of the disease which kills 1000 women in the UK each month but remains largely unknown. 

Also known as metastatic, advanced or stage IV breast cancer, it is a cancer that has spread beyond the breast to other parts of the body and can be treated but not cured.  On average there are around 35,000 patients in the UK currently living with this form of the disease. 

There is evidence that early access to innovative new treatment options can improve the outcomes of men and women with secondary breast cancer and the new, bespoke service, the first of its kind in the UK, sees specialist nurses support patients and link them up with clinical trials. 

The PTA scheme covers Scotland in its entirety through nurses based in Edinburgh, the Borders and the Highlands. Patients have an initial one-to-one, hour-long phone consultation with one of the nurses who can advise about clinical trials and answer any queries, search for suitable trials and support patients in discussing them with their clinician. 

“We know that many secondary breast cancer patients have never had a conversation with their clinician about clinical trials and we want to empower them to change that through our PTA service,” says PTA nurse Vivienne Wilson, a senior research nurse at Edinburgh’s Western General Hospital. 

“We want to ensure that every patient with secondary breast cancer has the knowledge and the opportunity to discuss trials as part of their treatment pathway.  

“I’m delighted that the Patient Trials Advocate service is now being expanded to include the whole of Scotland. I’ve been working with Make 2nds Count for over a year now and I think this service really is one of a kind. I enjoy the opportunity to talk to many secondary breast cancer patients, sharing my knowledge with regards to available trials and guiding them to explore their options.” 

Since the service piloted last year more than 100 patients have been supported. Of those, 100% backed the initiative and 95% said they would talk to their clinician about the possibility of accessing clinical trials. 

One of those who knows only too well the benefits of a clinical trial is Edinburgh mum-of-four Lesley Stephen. Diagnosed with stage IV breast cancer out of the blue in 2014, the disease had already spread to her lungs, liver and bones.

Two years later she was told she had run out of treatment options.  But she subsequently got the chance to take part in a clinical trial and is still living with the disease six years later. 

Lesley says: “I had undergone 18 months of treatment, which was unsuccessful, when I heard of a friend who was taking part in a clinical trial. That inspired me and gave me hope that there just might be another option. 

“I researched potential trials myself, which was not easy, and I realised that there was a lack of awareness. But because of the trial I took part in, I have had another six years of life I never expected to have. This just shows why the patient advocacy service is so important. People need to know that there perhaps, is another possibility out there for them.” 

Make 2nds Count was founded by mum Lisa Fleming, 38, of Edinburgh, who had no previous breast cancer diagnosis, warning signs or lump when she was told she had secondary breast cancer.

Her aim is to support patients and families, educate and raise funds for research into the disease. So far the charity has raised more than £1million.  

To find out more about the Patient Trials Advocate service visit: 

https://www.make2ndscount.co.uk/funding-research/patient-trials-advocate/   

Finalists announced for the VIBES – Scottish Environment Business Awards

More than 40 firms across Scotland are in the running to secure a prestigious VIBES – Scottish Environment Business Award.

A record number of entrants for the 2022 awards have been narrowed down to 45 finalists – from across a range of industries including food and drink, construction and life sciences. They will all be considered for one or more categories ahead of the award ceremony later this year.

Scotland is famous for its culture of innovation, making it ideally positioned to play a leading role in the journey to a more sustainable, low carbon future.

The VIBES – Scottish Environment Business Awards are a partnership between the Scottish Environment Protection Agency (SEPA), The Scottish Government, Energy Saving Trust, Highland & Islands Enterprise, Scottish Enterprise, South of Scotland Enterprise, Scottish Water, Zero Waste Scotland and NatureScot.

Since 1999, the VIBES – Scottish Environment Business Awards has recognised more than 270 businesses that have championed sustainability by identifying ways to tackle the impact on the planet by reducing consumption of its resources.

From increasing recycling and facilitating active travel to reducing consumption of raw materials by adopting a more circular approach, the dedication and drive of companies in Scotland at the forefront of tackling environmental change has been recognised by the VIBES – Scottish Environment Business Awards.

Gillian Bruce, chair of VIBES – Scottish Environment Business Awards, said: “Every year, the VIBES Awards highlight the progress made across Scotland to help move towards net zero.

“We see more and more firms and organisations who recognise environmental innovation and best practice can also bring economic benefits and it is always inspiring to hear entrants tell us about their work.

“Scotland is a leader in climate change action and every business can play a part in leading Scotland to Net Zero. We hope the finalists will encourage others to improve their environmental practices and help to safeguard Scotland for future generations.”

Environment Minister, Mairi McAllan, said: “Businesses have a huge role to play in protecting our environment and tackling the twin crises of climate change and biodiversity loss and I would like to congratulate all those that have been shortlisted.

“The VIBES awards are a great opportunity to recognise businesses that are showing leadership in making their operations more sustainable as part of Scotland’s journey to net zero.”

Around three quarters of this year’s applicants have entered VIBES for the first time. Two of the 12 categories – Nature Rich Scotland and Energy Transition Scotland – are new awards.

In the next stage, judges will interview each finalist or take part in a site visit, where finalists will be able to demonstrate their work. This will be fed back to the head judging panel, who will select the 2022 winners.

A full list of finalists:

  • Adelphi Distillery Ltd., (Ardnamurchan Distillery)
  • Aqualution Systems Ltd
  • Arran Dairies LTD Arran Milk & Arran Ice Cream Taste of Arran LTD
  • Balbeg Country Holidays
  • Beyond Green Advisors Ltd
  • BlueGreen Glasgow
  • Borders College
  • Bruichladdich Distillery Co Ltd
  • Dundee Rep & Scottish Dance Theatre Limited
  • Dunnet Bay Distillers Ltd
  • Edinburgh International Festival
  • Edinburgh Remakery
  • EGG Lighting
  • Frasers of Balmaha
  • Fresh as a Daisy (Dunblane) Ltd
  • Glasgow Chamber of Commerce
  • Green Action Trust
  • Hickory
  • Highland Meats
  • Highlands Rewilding Ltd
  • Hydrowheel Ltd
  • Innovatium Group
  • Kenoteq Ltd
  • KR Group
  • Logitech
  • Move On Wood Recycling
  • Multiplex Construction Europe
  • Omexom Morgan Sindall JV (unincorporated joint venture)
  • ReBlade Limited
  • Recyke a Bike
  • Redeem Exchange
  • Renfrewshire Council
  • Saltire Roofing & Building Ltd
  • SAMS Enterprise – Seaweed Academy
  • SAMS Enterprise – SIMBA
  • SRUC Elmwood Golf
  • The Highland Council
  • The Leith Collective CIC
  • ThermaFY Group
  • Total Homes Co-operative
  • University of Strathclyde
  • Verlume
  • Wood Recyclability
  • Woodlands Glencoe
  • YES Recycling Fife and Ecosheet

Improving rural connectivity

Enhanced 4G mobile phone coverage programme reaches halfway point.

A £28.75 million programme has ensured 4G mobile phone coverage has been expanded in dozens of more rural areas.

Improved digital connectivity has been delivered by the Scottish 4G Infill (S4GI) programme to help people across the country, from the Shetland Islands to the Borders, get online.

The programme has reached its milestone halfway point, building and activating 28 phone masts, with the remaining 27 on track to be connected by 2023.

Residents and businesses in Bogton, in Turriff in Aberdeenshire, were the latest to benefit from the programme.

Mobile network operator EE is providing 4G services across all bar one of the new sites, including the new Bogton mast, but all sites are capable of supporting multiple operators in the future.

S4GI is delivered in partnership with WHP Telecoms Ltd and the Scottish Futures Trust.

Economy Secretary Kate Forbes said: “The Scottish Government is helping more residents and workers get online and tackling some of Scotland’s longest standing mobile phone signal black spots.

“The availability of 4G services has proven transformational for members of these communities, who have taken advantage of new connectivity to enhance how they work, communicate with friends and family, access public services, purchase products and services and consume entertainment.

“The Scottish Government wants to build on that, through our National Strategy for Economic Transformation, to capitalise on the ability of enhanced digital connectivity to encourage innovation and growth. We will all need to work together to create a more prosperous, fairer and more sustainable nation.”

Howard Watson, Chief Technology Officer at BT Group, said: “In an increasingly digital world, bringing reliable connectivity to remote areas of Scotland is ever more important.  

“EE is now delivering 4G from 27 of the 28 masts built to date, boosting quality of life, local economies and helping to keep residents and visitors safe, by providing the Scottish Emergency Services with reliable ways to communicate.

“EE looks forward to bringing this essential infrastructure to more locations across the country through our partnership with Scottish Government and WHP Telecoms.”

Rob Tanner, a farrier and online table tennis coach near Bogton, said: “Being able to post videos and carry out coaching sessions without any problems is fantastic.

“I can now download a TV programme in seconds instead of hours, which is amazing.”

Edinburgh residents tell Rishi Sunak to make oil and gas giants pay, not ordinary people

As the cost of living crisis worsens, on Sunday 26th June and Sunday 3rd July Greenpeace volunteers spoke to people on Middle Meadow Walk and on Portobello Promenade about the connection between rising energy bills, Putin’s war, and the climate crisis.

They invited the public to write down how much their energy bills have already increased, and stick these messages onto a life-size cardboard cut-out of Chancellor Rishi Sunak. Volunteers found that most people’s bills had at least doubled and many were fearful of further increases. 

Jessie from Portobello wrote that her rising bills meant she hadn’t been able to put her heating on and was worried about what she would do in the Autumn, while another local wrote ‘my bills are not sustainable. Invest in greener energy!’ 

These messages, along with hundreds of others from across the UK, will be delivered directly to the Government so that Ministers can see how much people are really having to pay to heat their homes and cook food.

Anke, a Greenpeace volunteer from Bruntsfield, said: “‘I was shocked to hear how many more local people are worrying about being pushed into fuel poverty when bills rise again in the autumn. 

“Greenpeace Edinburgh volunteers are calling on the Chancellor to deliver an Emergency Energy Package that stops fuelling rising energy bills, the climate crisis and Putin’s war, and on our local MPs to keep the pressure on the Government until they do the right thing.” 

On 1st April energy bills went up by an average of £700, pushing 2.5 million UK households into fuel poverty. According to data published by Energy Action Scotland, as of last December, 24% of all households in Scotland live in fuel poverty. 

In October bills will rise again, potentially reaching up to an estimated £2600 per year, which could put 1 in 3 households in fuel poverty, according to National Energy Action. Life is only going to get harder for people in Edinburgh.

Although the Government has recently declared a windfall tax on oil and gas producers, this will only provide temporary relief and does nothing to address the causes of the climate or cost of living crises.

Greenpeace Edinburgh is calling for a tax rate of 70%, which could bring in an extra £13.4bn per year. £7.9bn of this tax should go towards the six million households experiencing fuel poverty. This would leave just over £5 billion to invest in the nationwide roll out of heat pumps, insulation and other energy efficiency measures as well as increasing investment in renewable energy infrastructure.

Anke continued: “This Government has failed to get a grip on the climate and cost of living crises. We’ll keep facing these problems for years to come while oil and gas giants pump out planet-trashing emissions and enjoy sky high profits.

“Join us in calling on the Chancellor to make them pay up”.

Healthy Heart Tip: Keep an eye on your waistline

Heart Research UK Healthy Heart Tip, written by the Health Promotion and Education Team at Heart Research UK

Healthy Heart Tip: Keep an eye on your waistline

Your waist circumference is an indicator of your risk of developing heart disease. If you carry too much fat around your middle, your risk of developing heart disease is higher, however this risk can be reduced by losing weight. We explain how to measure your waistline and tips for maintaining a healthy waistline.

What is a healthy waistline?

A healthy waistline for men is anything below 94cm (37 inches) and anything below 80cm (31.5 inches) for women. You are at a high risk if your waist circumference is 102cm (40 inches) or over for men or 88cm (34.6 inches) or over for women. If you are a man from African Caribbean, South Asian, Chinese or Japanese origin, a healthy waist circumference is anything below 90cm (35.4 inches).

How to measure your waistline

Checking your waist circumference will help you to identify whether you are carrying too much fat around your middle. To measure your waist, you first need to find the bone at the top of your hip and your bottom rib. You need to wrap a tape measure around your middle at the centre of these two points. Relax and breathe out when the measurement is taken. Ensure the tape measure is touching your skin, but not pulled too tightly. You can repeat the measure two more times and take the average.

Maintaining a healthy waistline

If your waist circumference is within the healthy range, this is great news. You should keep an eye on your waist circumference by measuring it from time to time. If your waist circumference is above the healthy range, you should try to lose weight through healthy eating and exercise. You can find lots of ideas for healthy eating and physical activity from the healthy tips and recipe pages on our website.

Sign up for our weekly healthy tips at www.heartresearch.org.uk/healthy-tips.

To help keep your heart healthy, why not try out some of our Healthy Heart recipes: https://heartresearch.org.uk/heart-research-uk-recipes-2/.

Or have a look through our Healthy Heart cookbook filled with recipes from top chefs, celebrities and food bloggers: https://heartresearch.org.uk/heart-research-uk-cookbook/.

Why not find out if you’re at risk by measuring your waistline today. There are many steps you can take towards a healthier heart.

YOTEL Edinburgh launches limited edition Matchatini cocktail

YOTEL Edinburgh has launched a limited-edition modern twist on a Tia Maria classic, with the Matchatini cocktail.

Combining the natural caffeine of Japanese green Matcha tea extract with Tia Maria’s indulgent creamy liqueur, YOTEL’s Matchatini is the perfect way to find some inner bliss in Edinburgh’s city centre. 

YOTEL Edinburgh’s Matchatini cocktail is the perfect chance to carve out some ‘me-time’, blending Tia Maria Matcha Cream Liqueur with grape, vodka and Matcha sugar for a silky smooth finish. The cocktail launches alongside self-care packs celebrating YOTEL’s exclusive partnership with Australian-born beauty brand Urban Jungle, making YOTEL the first hotel brand in the world to stock the luxury, ethical hair and bodycare. 

Guests can now add Urban Jungle’s ‘Do It On The Daily’ pamper bundles to their YOTEL Edinburgh room booking when they book a stay on yotel.com.

The bundle includes celebrated products such as the brand’s ‘Melt Me Softly Cleansing Balm’, which currently sells one tub every 12 minutes in Australia. Becoming one of the first places in the UK for fans to try out Urban Jungle’s innovative beauty products, guests at YOTEL Edinburgh can achieve that all important glow with Urban Jungle’s ‘Glow With The Flow Gel Serum’, delicately packaged up in a ‘Love Pouch Bubble Bag’.

Urban Jungle’s everyday essentials will gently wash the day away before locking in hydration, and now guests can sign off their ultimate self-care day in Edinburgh with a Matchatini, savour the iconic matcha tea flavour and refreshing floral notes and embrace a new mindful ritual. 

Matchatinis are now available for £9 at YOTEL Edinburgh’s contemporary bar and restaurant Komyuniti for a limited time only. Guests can also add an Urban Jungle ‘Do It On The Daily’ bundle to their stay in Edinburgh for £44. For more information and to book: www.YOTEL.com/en/urban-jungle

Created using matcha tea extract to provide a natural source of caffeine, Tia Maria’s Matcha Cream Liqueur creates a refreshing sweetness, sure to delight fans of the iconic Japanese green tea.

Hailed for its energising and calming qualities, matcha has swept the nation in recent years and now with YOTEL Edinburgh’s latest Matchatini concoction, guests can feel good about their drink choices, toasting to taking a break and creating new rituals. 

To create your own Matchatini at home, Tia Maria’s suggested recipe is: 

Ingredients:

  • 1 x grape
  • Matcha sugar
  • 30ml of vodka
  • 60ml of Tia Maria Matcha Cream Liqueur 

Method:

  1. Cut a grape in half and run the inside around the rim of a chilled glass
  2. Dip glass in Matcha sugar
  3. Combine 30ml of Vodka with 60ml of Tia Maria Matcha and give it a shake
  4. Serve and enjoy

YOTEL Edinburgh’s new pamper packages and Matchatini cocktail celebrate the launch of Urban Jungle hair and bodycare in YOTELs around the world. 

Urban Jungle’s ethically sourced products will be available in every YOTEL, YOTELAIR and YOTELPAD worldwide, meaning hotel guests can enjoy a new quality of hotel hair and bodycare, leaving bulky toiletries at home. Products including Urban Jungle’s Make Good Shampoo, Save the Day Conditioner, Magic Bullet Hand & Body Wash and Thirsty Work Hand & Body Creme will be available in every room, meaning YOTEL’s toiletries are cruelty-free, vegan and cute to boot! 

Committing to a greener way of working, YOTEL crew can monitor in-room product levels and refill as necessary, removing the need for wasteful miniature plastic bottles. Urban Jungle bottles are also made with EcoPure, an additive that assists with the biological breakdown of plastic overtime. 

YOTEL Edinburgh’s new wellness offering will encourage guests to slow down, taking time out of their busy days to enjoy a Matchatini in Komyuniti’s welcoming space, before dialling up their self care routine with Urban Jungle’s luxury packages.

To find out more about YOTEL or book a stay visit www.yotel.com or @yotel . 

To find out more about Tia Maria visit www.tiamaria.com or @tiamariadrink

To find out more about Urban Jungle visit www.urbanjunglebeauty.com or @urbanjunglebeauty . 

Celebrating our Heroes: Royal Regiment of Scotland Band hits the road to support Poppyscotland

They’ve played for Her Majesty the Queen as part of her Platinum Jubilee celebrations – and now fans can hear the Band of the Royal Regiment of Scotland on a national tour.

Scotland’s best-known military band has launched a series of concerts, “Celebrating our Heroes” to raise funds for Poppyscotland this autumn.

Renowned for their performances at Holyrood Palace and the Edinburgh Military Tattoo, the talented musicians will be touring venues in Livingston, Hamilton, Perthshire, Angus, and the Scottish Borders.

This year’s repertoire will include folk music inspired from across Scotland, featuring a collaboration with Hawick folk musician and songwriter, Alan Brydon.

The events follow similar successful tours in 2018 and 2019. All proceeds will go to help Poppyscotland deliver its life-changing support for members of the Armed Forces community across Scotland.

The first one will take place at Hamilton Town House on Friday 2nd September, followed by dates at Howden Park Centre, Livingston, Montrose Academy, and Bankfoot Church Centre, Perthshire. The final, festive concert will be on December 15th at Hawick Town Hall.

Gordon Michie, Poppyscotland’s Head of Fundraising, said: “We’re delighted to welcome back the Band of the Royal Regiment of Scotland after a two-year break due to the pandemic, and are very grateful for their continuing support. This is a fantastic chance to hear the internationally acclaimed band at local venues around Scotland.

“The concerts promise to be unforgettable evenings, featuring folk music inspired from across Scotland, from the Borders to the Western Isles, and guaranteed to get your feet tapping! They are always very popular, so we’d encourage music lovers to buy their tickets early before they sell out.

“All funds raised will help us continue our vital work, supporting current and former servicemen and women and their families, which is now needed more than ever.”

The Band of the Royal Regiment of Scotland, based at Dreghorn Barracks, Edinburgh, is one of the 22 Regular Army bands, and is made up of musicians who are also serving soldiers. As well as supporting the Army and performing at ceremonial occasions across Scotland, they have also played around the world, traveling to Hong Kong, New Zealand, Switzerland and Canada in recent years.

Concert dates are:

  • Hamilton Town House – Friday 2nd September 2022
  • Howden Park Centre, Livingston – Friday 30th September 2022
  • Montrose Academy – Friday 21st October 2022
  • Bankfoot Church Centre, Perthshire – Friday 4th November 2022
  • Hawick Town Hall – Thursday 15th December 2022

Tickets cost £15 (£12 concessions) and are available via:

 www.poppyscotland.org.uk/get-involved/things-to-do/2022-band-tour.

Community Festival documentary: Made in North Edinburgh

Screen Education Edinburgh partnered up with The Guardian to tell the story of the community in North Edinburgh and their fight to bring back their much loved festival.

Screen Education Edinburgh’s Film Tutor, Jennifer Souter, worked with John Domokos from The Guardian throughout this production.

Jennifer said “My aim when making the film was to show the positivity that is not often shown about this community in mainstream media.

“When undertaking initial research for the film I would ask local residents what they wanted to show people about the community and how they felt it had been represented in media and almost everyone’s response was that the community was filled with good people that we never get to see.

“Local people didn’t think there was enough positive stories about the area as much of the representation is dominated by crime and antisocial behaviour.

“During the course of the making of the film the team and I worked with so many amazing people  who work tirelessly to make things better for the community in spite of widening inequalities.”

The film follows the story of a community coming back together post-covid to create the first local Festival in decades. It highlights the importance of connection, recovery and never giving up.

Watch the full film on the Guardian here: 

Sign up for Drumbrae Holiday Club

Drumbrae holiday club is to be hosted at Rannoch Community Centre from Monday 18th July – Wednesday 3rd August.

This free holiday club is for children currently in P6- S2 who live locally.

They will provide fun centre based activities and local trips.

You can book online using the QR code in the poster, or get along to one of the registration nights on Tuesday 5th and 12th of July, 6pm – 7pm at Rannoch community centre, EH4 7ES.